A Little News.....

After much waiting I called Dr. Liebsch and left a message with his receptionist last Friday. He called us back yesterday, and said that he had completed his review of Zoe's case.
"
He wants her to have a CT and MRI done. Afterwards, he and Dr. Sekhar will review the results, and barring any regrowth of the tumor, he wants to make plans to have us come to Boston. He said that the complications from the tumor going into the pharynx, and the damage done from the infection has made the tissue very delicate so that is,in part, the reason why he has not moved faster on getting Zoe into radiation. He has wanted the tissue to heal adequately before radiating it. He also said that Zoe's is the most advanced case of Chordoma he has ever seen. I think that means the biggest. I'm not surprised by this, but it sent me back to that space where I second guess myself.

I'm very happy that we are starting to move forward again, because that means we're getting closer to being done with her treatment. I definitely have some anxiety about what the CT and MRI will show, but I know that no matter what we'll figure it out. What's important right now is that Zoe is healthy and strong, and that we're prepared for this next step.