Friday, June 13, 2008

Going Home?...

Yesterday we were told by Neurosurgery that Zoe could go to Seattle Children's Hospital as soon as they would have us. We just needed to talk to the Rehabilitation services first. Rehabilitation services said they would be ok with us going to Legacy Emanuel in Portland.
This morning the Rehabilitation Services Attending came in and evaluated Zoe, and he felt that not only could we go back to Portland, but we would only need to do out patient rehabilitation, so we have done a consultation with Physical Therapy, and are waiting to do a last minute CT scan, then we should be getting discharged. of course now that I said that we will end up getting stuck here for another week.

Everyone is saying that we an go home but no-one is committing to it. We have been hoping for a solid plan, but we are not really getting one.

Well my biggest hope for Fathers Day would be to be home and have both of my girls with me for the day.

So Dr. Sekhar
has said that, he is sending down the post op MRI to the Loma Linda Univ. Medical Center
, upon review they may want him to remove the remaining tumor, or they may feel like they can get them with the radiation. If they want him to remove them, he wants to wait for 2 months before doing so. If they feel that they can radiate them, then he thinks that they would want to start in about 2 months.

So it looks like we will be in Portland for at least the next 2 months either way. I wonder how this will work with the Halo on, I can't imagine that they would radiate with the halo on, and if we have another surgery that may extend the time that she has to wear the Halo. The Orthopedic surgeon, Dr. Mirza said that he would like to see 3 to 6 months in the Halo, but that the pins only last for 3 to 4 months. Well, I guess we will just have to roll with the punches like we have been, and it will work out how it is supposed to.

Thank You
Henry

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